I should be turning the corner on my hardest week yet, August 2-8, the 17th week since starting treatment. I’m sure it was a combination of circumstances. I got home from Kansas on Saturday feeling another uti coming on but since I had an appointment on Monday for the second infusion and a blood draw, and it was the weekend, I decided to let it go until then.
So Monday I got the infusion and left blood and urine. By Tuesday afternoon there were no results from the tests and I was running a low-grade fever, so I went back to the oncology office. Oh, they forgot to send off the urine and it was too old now, and the blood had curdled, or some such thing, making it unusable. So I left another urine sample and went straight to the lab for them to draw blood again.
The rest of the story is a couple days of more of the same, too tiresome to write, but finally by Friday everyone was ‘on the same page’ as they say.
The circumstances I’d been working through include – tired from the journey home, tired from the side effects of the infusion, tired from carrying an untreated uti, tired from running a fever, and tired from trying to get this all straightened out. On top of which I had an appointment with my GP, an appointment with my PT, lunch dates, and the Hollywood Bowl, all in four days. And for heaven’s sake, both my tenants have situations that require my attention.
My body feels quiet now and I’m expecting the New Normal for the next several weeks and am hopeful that the excellent and cancer-experienced PT will result in measurable improvement. That’s what we want.
I must not forget, do not make any plans for at least three days after the next infusion which isn’t until November. Get the infusion, go to bed. Before that though, in the last week of September I get to have a PET scan again to figure if this is a successful treatment plan. That’ll be exciting!